I had decided to speak up and teach families especially about SCD. I did so after I saw the many misinformation and clichés surrounding Sickle Cell disease and those living with it.
Working with families meant respecting their wishes and keeping quiet about them. But whenever, the media came to me, I shared my own story.
Here is a link to one of them. I hope it inspires, strengthens and encourages someone or a family out there.
