Sickle Cell and Me: Back to Back working with my warrior sister, Arrey Etchi

Anne-Chantal
Posted August 3, 2019 from Cameroon

Comments 6

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Jill Langhus
Aug 05
Aug 05

Hello Anne-Chantal,

How are you doing, dear? Thanks for sharing this inspiring and informative interview. I can see why you're so passionate about SC, and also why reading your interview also helps to keep you motivated and inspired, then. So, what are the stats for whether you will get it if say, one parent has it, or what about both?

Hope you're doing well, and having a great week!

Anne-Chantal
Aug 08
Aug 08

Hi Jill,
I am very well thank you. Oh yes, sometimes when you are surrounded with su much negativity and people who are resisting being educated, it's good to take a step back to boost my own confidence. Well, normally, if one parent is SS, that means has the disease, then the other is AA, which means that parent doesn't have the disease, then there is a 50/5 chance the kid will be As, meaning a carries the genes only. But there are cases I have seen where parents are as I have described and the baby doesn't have the disease, meaning s/he is AA. I call such, miracle cases Now if one parent has the disease, SS and the other has just the genes, As, there are chances some of thier children will have the disease while others will be carriers as well. Now how many will be sickle cell warriors depends on how conerntrated the disease genes are in each of the parents. There are some As persons carriers who get sickle cell crisis, that is they get sick though very rarely. This is because they have a stronger concentration of the disease in their S genes. That's as simply as I can explain.

Jill Langhus
Aug 08
Aug 08

Hi there:-)

Great to hear! Wow! That's complicated. Thanks for your thorough explanation. Very interesting.

Hope you have a great Friday and weekend, dear:-)

Tamarack Verrall
Aug 05
Aug 05

Dear Anne-Chantal,
Approximately 5,000 Canadians, including children, have sickle cell disease but it is from my sisters in World Pulse that I have become aware of this disease. Your interview is beautiful, and these statements of yours resonate deeply: "I grew up seeing the disease as something not to be afraid of but to learn to understand"; "People are always afraid of what they can’t understand so if they understand"; "Let your dreams take you to wherever you wish to be". How lucky for all who have the chance to meet you and be both educated and/or encouraged by you.

Anne-Chantal
Aug 08
Aug 08

Thanks for your encouraging words Tamarack. I came across some starts from Canada from my brother who works as a social worker there. I so pray he can help educate and encourage them whenever he comes across any warrior . Like every sickness or issue of concern the battle is in our pysche. If we loose that battle we have lost all. Fear is to be kept far away as it prevents one from holding on to life.

Hello, Anne,

I’m so glad you and sister Arrey are working together to spread awareness on Sickle Cell. You both are strong advocates!

Thanks for sharing this interview with her. It was through Arrey I was made aware of that disease. You are a rising voice with her. May you both raise an army of strong sickle cell warriors!

So proud of the fights you’ve won! Keep pressing on!