Sickle Cell Disease and Me. The first life saving step.

Anne-Chantal
Posted September 4, 2019 from Cameroon

Many people have asked me what is the first step in the fight against Sickle Cell Aneamia. 

Many had expected me to say all kinds of things but I simply answered you. 

Yes, I know you would ask me, me?

Sickle Cell has no cure and the only way to eradicate the disease is by knowing if one has the disease. So the first step is taking that test called the electrophoresis test.

It is only when one knows thier status that one can know how to proceed with their life, and that includes taking conscious steps to avoid having the disease reappear in the genes of future  generations.

Now since there is no cure for sickle cell disease, the only way to wipe it out is by elimination. By doing every thing to eliminate the S genes. This can only be done when people with sickle cell marry none sickle cell persons. By so doing, the S gene is eliminated along the line.

So the maths will be something like :

SS marries AA = kids who will be AS  now these kids marry AA  which is :

AS marries AA = probability of kids being mostly AA or some being AS but with a weaker S gene.

Now if we continue crossing off these weakened S genes to a none sickle cell phone A gene, way down generations, the S gene will finally disappear.

It is for this reason that everyone should know thier status. But again knowing one's status makes you better informed when taking life decisions like who to marry or just makes you understand yourself better and body better. 

Comments 20

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Wusufor
Sep 04, 2019
Sep 04, 2019

Dear Anne,
I hope you are doing very well? You are an ambassador in deed. You keep updating us about sickle cell.
I am moved by your post and I will surely add it to my time table when the need arose.
Have a great day.

Anne-Chantal
Sep 06, 2019
Sep 06, 2019

Many thanks for your feedback Lisbeth.
Most grateful.

Karen Quiñones-Axalan
Sep 05, 2019
Sep 05, 2019

Hello, Anne,

Thank you for this sickle cell informative post on how to eliminate sickle cell. Has there been an instance when two persons with sickle cell married each other? Did it make the sickle cell worse?

Thank you for raising awareness! Please keep sharing more. Hope you have a great day!

Anne-Chantal
Sep 06, 2019
Sep 06, 2019

There are actually instances where SS persons have gotten married and I bet you it doesn't spell anything nice for the family. I have not actually come across a family of two SS persons but I have heard of cases. What happens in such a family is that not. Will the kids have Sickle Cell Aneamia but they will have mixed complications inherited from both parents. So some how, yes their health problems get worse.

Karen Quiñones-Axalan
Sep 08, 2019
Sep 08, 2019

Oh, now, I understand. Thank you for your explanation. I appreciate it. Please keep writing. :)

Jill Langhus
Sep 06, 2019
Sep 06, 2019

Hi Anne,

Thanks for sharing your informative post about sickle cell. That's good information to know. I kept thinking people that are both sickle cell can be married, they just need to decide not to have children, or adopt children, right, if they want children.

Hope you're safe, and well:-)

XX

Anne-Chantal
Sep 06, 2019
Sep 06, 2019

Hello Jill,
Actually it's the advise given by doctors to not just SS persons of they wish to get married but even also to a couple made of an AS nd and SS person. I have been there and I opted not to have kids. But the relationship didn't get further and I didn't have to respect that option any more.

Jill Langhus
Sep 07, 2019
Sep 07, 2019

Hello there:-)

I see. So, do you have kids now, then, or did you decide not to?

BENEDICTE
Sep 06, 2019
Sep 06, 2019

merci beaucoup pour ce poste tres vital pour toute la planete! il nous permet de prendre conscience et de prendre soin de toute notre lignée à venir; nos enfants! merci!

Anne-Chantal
Sep 06, 2019
Sep 06, 2019

Benedicte, je suis très ravi que vous avez retenu le message. J'espère que tout le monde peuvent le faire ça va vraiment sauver nos générations à venir. Excellente journée à vous.

Oluwatoyin Olabisi
Sep 06, 2019
Sep 06, 2019

May God continue to strengthen you and give you courage.
Thank you for sharing and please follow me back

Anne-Chantal
Sep 06, 2019
Sep 06, 2019

Thank you very much for your supportive words, Oluwatoyin. I have followed you.

Tamarack Verrall
Sep 07, 2019
Sep 07, 2019

Dear Anne-Chantal,
Thank you for explaining Sickle Cell, I understand so much more now. I hope you are able to encourage many to be tested, so that they will know their status. What a difficult and serious health issue so many are dealing with. I'm sure your clear voice on this will help many.
In sisterhood,
Tam

Anne-Chantal
Sep 11, 2019
Sep 11, 2019

Many thanks for your encouraging words Tam. That is my most fervent wish, to get everyone to know thier status by tacking the test.

Nicole reid
Sep 08, 2019
Sep 08, 2019

There are treatments for this condition. What is available to you for treatment or relief of symptoms

Anne-Chantal
Sep 11, 2019
Sep 11, 2019

Hello Nicole. So far, I have not yet heard of a cure. May be there is some new research that has been done. Treatment like bone marrow transplant exist but I am yet to encounter someone who did it and if it worked. In Cameroon, there is a Doctor who has invented a herbal drink that is said to stop the red blood cells from further mutation. I have been planning to meet him and may be test the treatment on myself.

Anita Shrestha
Sep 15, 2019
Sep 15, 2019

I have just heard about SS thank you for sharing.

Anne-Chantal
Sep 19, 2019
Sep 19, 2019

It's been a pleasure, Anita

Anita Shrestha
Sep 19, 2019
Sep 19, 2019

Welcome dear

Juliet Acom
Sep 23, 2019
Sep 23, 2019

Hello Anne,

Thank you for being a true warrior in the sickle cell nation. You are right the only way to completely wipe it out is by elimination.
I also encourage those who are already living with it to use the option for bone marrow transplant - if they have the resources and a willing donor. Otherwise the sickling test is the way to go.

Cheers on this great initiative!

Regards,