Struggles with having Willam syndrome

annelise
Posted June 7, 2018

I think if you have a disability it is not right to treat you like you are not there like a ghost. I have Willam syndrome and it is hard for me to go in stores in public. Almost every time I go to a store or if I am walking my dog at a park people stare at me and it  makes me sad, mad,angery. I don't like it when people stop talking when I walk by or point at me because of the way my body or face looks. Actions hurt more then words and I know it is true. I have had people who just don't look at me or say hello when I walk by and I don't know why and it hurts a lot. I don't get why people have to be so freaking rude to people when you are just going on with your day with your mom or dad and you have a disability. When ever I am in public I try to be nice to people who I don't know so they can have a good day. 

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Karen Quiñones-Axalan
Jun 07, 2018
Jun 07, 2018

Hello, Annalise,

This is my first time to read about William's Syndrome. I Googled it right after reading your post.

I'm sorry to hear that you feel rejected by other people while you are in public. Let me give you a virtual hug. My son has a Global Developmental Delay. He has limitations on what he can do, too. He couldn't speak and is delayed in everything. More like a baby. A huge baby. But I love him so much.

You have a space to share your stories in World Pulse. I would love to read more of your stories.

annelise
Jun 07, 2018
Jun 07, 2018

Thank you for doing that and yes it is hard and tough and not a lot of people like to listen to what I want to say and thank you for sharing and I’m glad I joined

Karen Quiñones-Axalan
Jun 07, 2018
Jun 07, 2018

We would love to hear your voice as someone with William's Syndrome.

Please write your struggles physically, mentally, socially and more. That way we can understand people with syndromes like yours.

Thank you, Annelise!

Jill Langhus
Jun 09, 2018
Jun 09, 2018

I agree. Well said, Karen:)

annelise
Jun 07, 2018
Jun 07, 2018

Thank you and I will get on it soon!!

Suh Diviner
Jun 08, 2018
Jun 08, 2018

Hi Annelise
I am glad you voiced your story out and i love the way wrote.
Disability isn't a barrier to achieving what you desire. You don't need to please people with your looks. Showing them love is enough you can offer.
You have a place in worldpulse my dear.
Keep writing because there are many who wish to hear from you.

Jill Langhus
Jun 08, 2018
Jun 08, 2018

Hi Annelise. I hear you. That must be really painful. It's difficult to know how to respond to people sometimes. I'm not saying people should stare, because you're quite right, that is unacceptable. It reminds me of this one time, though, that I was in a supermarket and I asked a man in a wheelchair that was having trouble reaching something and he lashed out at me. Needless to say, it made me think twice about offering help again. Being an empath, I can totally relate to people going through challenges, but like I said, it takes instances like this one that then I question how I handle the next situation. I would still smile at someone that has a disability, but then I immediately feel guilty or uncomfortable because I end up questioning whether they want me to smile at them, and then, I wonder, am I staring. Maybe you can help me on this one?!

Also, do you feel like people are judging you when they stare and point? Maybe they're just handling the situation really poorly because they haven't been taught to be more humane around people with disabilities. I don't think most people have.

annelise
Jun 08, 2018
Jun 08, 2018

You are right it is very painful. I agree with you and sometimes you have to ask first if somebody needs help or not. Well that is a good question and maybe just do a quick smile for not a long time. I do because I always get a feeling if they are pointing at me they are judging me. Not a lot of people who don't have a disability want to know people who have one unless they want to bully them or want to know them.

Jill Langhus
Jun 09, 2018
Jun 09, 2018

Sorry to hear that and that you experience so much pain:( Okay. That's what I usually do, but then end up feeling uncomfortable because I want to be friendly but I don't want to be intrusive...:(

Yes, that makes sense, especially if they're pointing. I'm just wondering if you reframe the belief that everyone is judging you that is staring and pointing that it could cause you a lot less pain, or even forgiveness for those people... not saying that it's right that they're doing it, but forgiving them for being human, so that you are free.

Aw, that's so sad. I want to know you, and I'm sure other people want to know you. You're just like every other person that needs love and to be supported. I hope that's not true. I think people just bully because they don't know how to react and because they see a perceived easy target or someone weaker than them. It doesn't make any sense when you think about it. Other than, really they are the weak ones because they are being intolerant to weaknesses. Does that make sense or help you to think of it in another way?

annelise
Jun 09, 2018
Jun 09, 2018

you don't have to uncomfortable you can say hello or say something nice. I have forgave people for that but not the people that hunted me the most. I totally agree with you on that

Jill Langhus
Jun 09, 2018
Jun 09, 2018

Well, that would be good..ha:) I will work towards not feeling uncomfortable and I will say at least "hi" next time. You've encouraged me to do it:-)

Yes, it can take awhile to forgive people that have hurt us and triggered us on a very deep level. I get it. May we both heal and be free completely...

annelise
Jun 09, 2018
Jun 09, 2018

I'm glad that I helped you with that. It's been a long road

Jill Langhus
Jun 09, 2018
Jun 09, 2018

Yes, you did! I bet. I hope you share with us more of your story so that we can all heal more, and also be able to interact in a more healthy and empathetic manner with people with disabilities.

annelise
Jun 09, 2018
Jun 09, 2018

I will share more.

Jill Langhus
Jun 09, 2018
Jun 09, 2018

Awesome:) Looking forward to it.