ARREY- ECHI

Joined Jan 2016
  • Ambassador
  • Featured Changemaker
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Vocal Contributor
Following: 25Followers: 77

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

My vision is to form a platform which seeks to demystify sickle cell, change the narrative and empower people living with sickle cell.

Interests

Education EqualityWomen and the EnvironmentGender-based ViolenceEmpowering GirlsWomen's HealthHuman Rights for WomenWomen in Leadership

Posts

Activity

ARREY- ECHI commented on Jensine Larsen: A Sunbeam to Women! Aug 21 ARREY- ECHI commented on Four Seasons of Colour Awareness and Pilot Free Screening for Sickle Cell Anemia to Celebrate World Sickle Cell Day, 2019. Aug 21 ARREY- ECHI commented on Weaving the World Pulse Message into My Impact Story Aug 18 ARREY- ECHI loved Weaving the World Pulse Message into My Impact Story Aug 18 ARREY- ECHI commented on The Frog In A Slowly Heating Water. Aug 02 ARREY- ECHI commented on I am not dead Aug 02 ARREY- ECHI commented on Teach young girls to be responsible for the vulnerable Aug 02 ARREY- ECHI commented on No schooling exposes girls to a life filled with problems Jul 29 ARREY- ECHI commented on When We Empower Teenage Girls...We Raise Young Entrepreneurs Jul 29 ARREY- ECHI commented on The woman in Me Jul 29 ARREY- ECHI loved The woman in Me Jul 29 ARREY- ECHI loved No schooling exposes girls to a life filled with problems Jul 29 ARREY- ECHI commented on GENDER, SEX AND GENDER EQUALITY Jul 26 ARREY- ECHI loved GENDER, SEX AND GENDER EQUALITY Jul 26 ARREY- ECHI commented on Kutsaca = Being Happy Jul 26 ARREY- ECHI commented on Faith Delivered Jul 26 ARREY- ECHI loved Faith Delivered Jul 26 ARREY- ECHI commented on The woman in Me Jul 26 ARREY- ECHI commented on Give your best Jul 26 ARREY- ECHI loved Give your best Jul 26 ARREY- ECHI commented on Sickle Cell and Me: An interview I gave. Jul 26 ARREY- ECHI commented on The strength of a woman Jul 26 ARREY- ECHI commented on God also deserves the Best ones Jul 25 ARREY- ECHI commented on Women empowerment Jul 24 ARREY- ECHI loved Women empowerment Jul 24 ARREY- ECHI loved Conversation on acid attack between two women Jul 24 ARREY- ECHI commented on My vision towards WARRIORS Jul 08 ARREY- ECHI loved World Pulse is Going to Women Deliver: Are You? May 31 ARREY- ECHI loved We created a podcast to bust period stigma May 29 ARREY- ECHI commented on My dad was there for my first menstrual experience, he equipped me. I have also witnessed some fathers do that for their daughters with mothers around May 29 ARREY- ECHI loved My Dad Made Sure I Was Prepared May 28 ARREY- ECHI loved GHANA: Reusable Pads a Sustainable Solution for Girls May 28 ARREY- ECHI loved INDIA: Men, Motorcycles, and Menstruation May 28 ARREY- ECHI loved Dfferent people in school May 17 ARREY- ECHI loved ICT has changed my life , so i am trying to transform this Technology to other girls & women Apr 26 ARREY- ECHI loved ICT and Environment Protection Apr 26 ARREY- ECHI loved Janitor to Office Assistant Apr 26 ARREY- ECHI loved ICTs - Inter-generational Connections Apr 25 ARREY- ECHI loved The Wonders of Technology Apr 25 ARREY- ECHI loved Becoming a Tech Evangelist Promoting STEM for Girls & Women Apr 25