ARREY- ECHI

Joined Jan 2016
  • Ambassador
  • Featured Changemaker
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Vocal Contributor
Following: 25Followers: 73

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

My vision is to form a platform which seeks to demystify sickle cell, change the narrative and empower people living with sickle cell.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY- ECHI commented on Going Through Life With Double Pain : Sickle Cell and Menstruation May 17 ARREY- ECHI commented on The moonly visitor May 17 ARREY- ECHI loved Dfferent people in school May 17 ARREY- ECHI commented on My first menstruation May 17 ARREY- ECHI commented on Mensuration is a burden for Women  May 17 ARREY- ECHI commented on My life, my story my dilemma May 16 ARREY- ECHI commented on Technology as an Indispensable Tool in Sickle Cell Advocacy. May 10 ARREY- ECHI loved Learning , Unlearning and Re-Learning from the Sankofa: Culture and Africa’s Future Apr 29 ARREY- ECHI loved Zimba Women - Using Tech To Uplift other Women Apr 26 ARREY- ECHI loved ZIMBABWE: We Are Tired of Being Groped Apr 26 ARREY- ECHI commented on ICT has changed my life , so i am trying to transform this Technology to other girls & women Apr 26 ARREY- ECHI loved ICT has changed my life , so i am trying to transform this Technology to other girls & women Apr 26 ARREY- ECHI commented on ICT for Midwives Apr 26 ARREY- ECHI commented on Letter to Ms. Alice Apr 26 ARREY- ECHI commented on ICT and Environment Protection Apr 26 ARREY- ECHI loved ICT and Environment Protection Apr 26 ARREY- ECHI commented on Janitor to Office Assistant Apr 26 ARREY- ECHI commented on #YourSlipIsShowing: Countering a misinformation campaign on social media Apr 26 ARREY- ECHI loved Janitor to Office Assistant Apr 26 ARREY- ECHI commented on The Increase in Child Rape: Cases in our Society (What do we do?) Apr 26 ARREY- ECHI commented on ICTs - Inter-generational Connections Apr 25 ARREY- ECHI loved ICTs - Inter-generational Connections Apr 25 ARREY- ECHI loved The Wonders of Technology Apr 25 ARREY- ECHI commented on The Wonders of Technology Apr 25 ARREY- ECHI commented on ICT Paved My Way Apr 25 ARREY- ECHI loved ICT Paved My Way Apr 25 ARREY- ECHI loved ICT Catapulted Me To The World! Apr 25 ARREY- ECHI commented on ICT Catapulted Me To The World! Apr 25 ARREY- ECHI commented on ICT is the way to go Apr 25 ARREY- ECHI loved Meet Saruki, the peacebot Apr 25 ARREY- ECHI loved I AM LIVING MY DREAM: ONE CLICK GOT ME CONNECTED TO WORLD PULSE AND THE WHOLE WORLD Apr 25 ARREY- ECHI commented on My Vision is Balanced with ICT Apr 25 ARREY- ECHI commented on Becoming a Tech Evangelist Promoting STEM for Girls & Women Apr 25 ARREY- ECHI loved Becoming a Tech Evangelist Promoting STEM for Girls & Women Apr 25 ARREY- ECHI loved I’m a girl and I menstrate Apr 17 ARREY- ECHI loved Keeping up with status is ruining women Apr 17 ARREY- ECHI loved Have you ever felt invisible? Mar 19 ARREY- ECHI loved Timely adjustment will mobilise the needed resources in Building Your Self-Confidence. Mar 08 ARREY- ECHI loved Breaking the Silence Mar 08 ARREY- ECHI loved When women join hands and merge their stories Mar 08