ARREY - ECHI

Joined Jan 2016
  • Ambassador
  • Featured Changemaker
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Vocal Contributor
Following: 25Followers: 72

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI loved The Morning Shows the Day: Apr 17 ARREY - ECHI commented on A Glimpse At Our Sickle Cell Warriors’ Fun Day Out. Feb 08 ARREY - ECHI commented on CAMEROON: Without Health Care, We Are Not Secure Jan 16 ARREY - ECHI commented on Financial Freedom, a Key Ingredient in the Eradication of Domestic Violence in Teso Jan 14 ARREY - ECHI commented on NIGERIA: The Hand That Rocks the Cradle Holds the Key to Peace Jan 14 ARREY - ECHI commented on CAMEROON: My Security Starts With Me Jan 11 ARREY - ECHI commented on What gives me hope. Jan 10 ARREY - ECHI loved When There is a Call for Action Jan 10 ARREY - ECHI commented on PHILIPPINES: During Disasters, Women Count On Each Other Jan 09 ARREY - ECHI commented on Feminist Foreign Policy - A viable solution for a feminist society Jan 09 ARREY - ECHI commented on Mental health,a cause for concern;a view inside my mind! Jan 04 ARREY - ECHI commented on The HOPE we never Expected! Jan 04 ARREY - ECHI commented on "Harvest Song" Jan 04 ARREY - ECHI commented on Centre stage is where we belong Jan 04 ARREY - ECHI commented on A wife without a husband Jan 04 ARREY - ECHI commented on Mental Illness shouldn't be a handicap: Recovery is possible Jan 04 ARREY - ECHI commented on I am a girl affected by conflict Dec 05, 2018 ARREY - ECHI commented on NEPAL: Safety Shouldn’t Mean Losing My Freedom Dec 05, 2018 ARREY - ECHI commented on You're not listening to the Quran, you're listening to Allah by Imam Asi Dec 04, 2018 ARREY - ECHI commented on Her Sister's Keeper Dec 04, 2018 ARREY - ECHI commented on Saving myself, so i may yet save the world Nov 27, 2018 ARREY - ECHI commented on Putting to practice all that World Pulse has trained me on: Tamenglong Orange Festival Nov 27, 2018 ARREY - ECHI loved Building Peace in a Time of Terror: The challenge of insecurity in the minds of men and women Oct 24, 2018 ARREY - ECHI loved My Struggle from Overweight to Underweight Oct 18, 2018 ARREY - ECHI loved Peace and security to me don't start with weapons, but with social values and principles Oct 18, 2018 ARREY - ECHI loved Bodily integrity is my first security Oct 17, 2018 ARREY - ECHI loved A Girl's Memoirs With Demons (My story for World Mental Health Day) Oct 17, 2018 ARREY - ECHI loved To and For me: Self Care is the Best Care!!! Oct 17, 2018 ARREY - ECHI loved International Day of the Girl Child - 11/10/18 Oct 16, 2018 ARREY - ECHI loved Dear Ayo, in spite of our fractured girlhood we made it... Oct 15, 2018 ARREY - ECHI loved Finding My Own Peace Oct 15, 2018 ARREY - ECHI loved REUSSIR MALGRÈS LES FRUSTRATIONS MATERNELLE Oct 15, 2018 ARREY - ECHI loved Breaking the Silence: My Journey from Surviving to Thriving after multiple abuse Oct 15, 2018 ARREY - ECHI loved My Voice Oct 15, 2018 ARREY - ECHI loved Finding our Voices, Communicating our Peace – a Pacific Journey Oct 01, 2018 ARREY - ECHI loved Women take your place in security issues Oct 01, 2018 ARREY - ECHI loved Peace Is For Everyone! Sep 28, 2018 ARREY - ECHI loved Peace, Security and the Voices of Women Sep 25, 2018 ARREY - ECHI loved CAMEROONIAN WOMEN, PEACE AND SECURITY FRONTLINE ADVOCATES Sep 25, 2018 ARREY - ECHI loved Every Little Life Matters Sep 25, 2018