ARREY - ECHI

Joined Jan 2016
  • Ambassador
  • Featured Changemaker
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Vocal Contributor
Following: 25Followers: 72

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI commented on Girls Give Me Hope Feb 04 ARREY - ECHI loved MENSTRUAL CYCLE- AN IDENTITY OF WOMANHOOD Feb 04 ARREY - ECHI commented on Empowerment Project Featuring Attorney Beth Klein from Boulder Colorado Jan 14 ARREY - ECHI loved I DID NOT QUIT BUT IT SEEMS TOUGH Jan 10 ARREY - ECHI loved Table Banking Our Way to Economic Freedom Jan 10 ARREY - ECHI loved THE DAY I BECAME A WOMEN ADVOCATE and ACTIVIST. Jan 10 ARREY - ECHI commented on A journey towards Economic Empowerment- a Case study from West Bengal, India Jan 09 ARREY - ECHI commented on Diary of a Pregnant Virgin (Sex Education is Key) Jan 04 ARREY - ECHI loved List Most “Chandigarh” Vashikaran Specialist in Chandigarh - Ncr Ambala: Jan 04 ARREY - ECHI commented on How Rape and the Silence Culture Empowers Predators Nov 22, 2018 ARREY - ECHI commented on "The Ban" produced by Laila Al-Arian won an Emmy Award!! Here is a presentation by Laila about her movie and issues surrounding Trump's ban. Nov 09, 2018 ARREY - ECHI commented on Not Just Girl Talk - Turning A Story into Community Action Nov 09, 2018 ARREY - ECHI commented on "Oh! The Greed Of My Home Land" Nov 02, 2018 ARREY - ECHI commented on Menstruation Time Nov 02, 2018 ARREY - ECHI commented on Inmate ICT trainees prayed for me Nov 02, 2018 ARREY - ECHI commented on SICKLE CELL DISEASE Oct 29, 2018 ARREY - ECHI commented on Ourselves In The World of Stress Oct 29, 2018 ARREY - ECHI commented on Caring for myself Oct 29, 2018 ARREY - ECHI commented on I Give Myself Permission: An emancipation poem Oct 29, 2018 ARREY - ECHI commented on The numbers on sexual assault in India keep mounting Oct 29, 2018 ARREY - ECHI commented on WOMEN AND SECURITTY Oct 29, 2018 ARREY - ECHI commented on Our Enslavement in Freedom Oct 24, 2018 ARREY - ECHI commented on POSH Workshop at Arvind Mahila College Oct 24, 2018 ARREY - ECHI commented on The Fruit of Colors Oct 19, 2018 ARREY - ECHI commented on My Struggle from Overweight to Underweight Oct 18, 2018 ARREY - ECHI loved The Day I Understood Social Isolation Oct 16, 2018 ARREY - ECHI loved PHILIPPINES: There is Beauty in Our Differences Sep 28, 2018 ARREY - ECHI loved World Pulse Names Olutope (Topsie) Olatilewa E. of Nigeria a Featured Changemaker During Economic Power Campaign. Jul 27, 2018 ARREY - ECHI loved If she is a daughter and not a son it does not mean she will not feel pain Jul 18, 2018 ARREY - ECHI loved REPOSITIONING MY EMPOWERMENT WALK FOR EFFECTIVE COLLABORATION AND SUSTAINABLE BUSINESS DEVELOPMENT OF POOR WIDOWS AND SCHOOL DROP-OUTS IN RURAL NIGERIA Jul 18, 2018 ARREY - ECHI loved NIGERIA: My Letter to Mathematics Mar 27, 2018 ARREY - ECHI loved PHILIPPINES: I Survived Tropical Storm Kai-Tak Mar 27, 2018 ARREY - ECHI loved Disability: How can you ever take away the pain! Mar 27, 2018 ARREY - ECHI loved CAMEROON: I Will Not Let Disability Silence Me Mar 27, 2018 ARREY - ECHI loved My Digital Action Campaign Stood Out At #2017 Airtel Change-Your-Story Multimedia Training Sep 22, 2017 ARREY - ECHI loved UGANDA: Dear Sweet Baby Anita Sep 22, 2017 ARREY - ECHI loved ZIMBABWE: No One Told Me About My Period Sep 22, 2017 ARREY - ECHI loved More Exciting News about the Impact of “Bring a Girl to STEM” Sep 22, 2017 ARREY - ECHI loved CAMEROON: I Survived Human Trafficking and I'm Changing Lives Sep 22, 2017
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