The Journey of Hope

EstherNtarangwiNyambane
Posted January 30, 2020

My name is Esther Ntarangwi, I am from Kenya, born and brought up in Meru county but currently living in Nairobi county, the capital city of Kenya.

I am married and blessed with 3kids. My passion is to advocate for persons afflicted by Cerebral Palsy.

Cerebral palsy is a condition not a mental sickness, curse or witchcraft has people persive it. It can't worsen but the condition can be managed by giving the affected adults or kids therapy and those who get convulsions to get the right medication for preventing them. Cerebral palsy comes with various challenges. And they have to be managed.

Parents to kids teamed up and started a charitable organisation called Cerebral Palsy Society of Kenya for them to be able to help their kids and for other parents who had the same issue. The centre is located in Donholm estate in Nairobi. I'm a parent there and also a Board Member.  My son is seven years and in grade one. It is a tough journey to have a kid afflicted by Cerebral Palsy. But I thank God for his blessings upon him.

My achievement and greatest happiness will be to see, adults and kids afflicted by Cerebral Palsy are able to get Better Education, excellent health care, equal employment opportunities and any other human rights entitled to other abled persons.

We empower parents to start their small entrepreneur projects, table banking, teaching them livelyhood  skills like soap making, cooking, knitting, bead work and other related art works. 

Also in areas where the kids have grown and it becomes hard to be brought to the center for therapy, we offer outreach therapy where the therapist can reach their homes by use of motorcycle. Therapy is very important to anyone afflicted by Cp.

My future vision is to see adults and kids afflicted by CP are free from victimization and stigma. 

This story was submitted in response to The Real Me.

Comments 11

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TataWirba
Jan 30
Jan 30

Hi Esther.
Nice to have you in World Pulse. You got a wonderful foundation. I believe you presence in World Pulse is going to give you more people to network who are into a similar cause and those who can promote your cause.
Remain focus , keep sharing inspiring stories and be best assured you will get the right connections.
Love and blessings to you and your family
Tata

Jill Langhus
Jan 31
Jan 31

Hi Tata,

What great feedback! Keep up the great work, and welcome to the World Pulse Encourager program. We're happy to have you with us:-)

Beth Lacey
Jan 31
Jan 31

This is very good work

Jill Langhus
Jan 31
Jan 31

Hi Esther,

Welcome to World Pulse:-) What a great organization you're a part of. It's great to hear these sort of stories and to realize that children, and adults, are getting better options now than ever before than need them. Kudos to you and your co-workers. Does your organization have a website and/or social media page(s) to follow?

I hope your vision becomes a reality, dear, in the near future. Looking forward to seeing more stories from you.

lizzymark
Jan 31
Jan 31

Hi Esther,am so proud of you and other parent for the bold step you've taken to shun the stigma and challenge CP brings so you can support your kids and those of others,its a great step and a compassionate job you do,I pray you all find more strength and support to achieve your dream.

Metiege Noel Eve
Feb 03
Feb 03

Lovely story. Many people used to die from common deseases due to lack of knowledge and the belief in witchcraft.

Anita Shrestha
Feb 03
Feb 03

Dear Sis
Thank you very much sharing for this story. Keep it continue

Hello, dear Esther,

Welcome to World Pulse! What a joy to know that another voice from Nigeria is rising up!

Your story resonates with me because my six-year-old son has special needs, too. He's delayed in all developmental areas, and has low muscle tone. His diagnosis is Global Developmental Delay and could also have autism.

I hear you on how challenging it is. You are indeed blessed. I'm really interested in how parents teamed up to form a Cerebral Palsy Society. Please write more about it because it would help parents like me, too.

Thank you for raising awareness of cerebral palsy. I look forward to reading more about your journey. I'm curious how did you learn about World Pulse.

Welcome again to our growing family!

Nene Nkengla
Feb 04
Feb 04

Dear Esther,
Thank you very much for sharing your passion. You are doing a great job in Kenya and I know you will get to higher heights. Keep soaring

Endale Edith
Feb 05
Feb 05

Dear Esther,

I appreciate you for sharing your vision with us at World Pulse. Thank you for stepping out of your comfort zone to bring awareness to Cerebral Palsy. We all at World Pulse are behind you and we love you.

Courage!

Myra Tambor
Feb 09
Feb 09

great to know you. I look forward for more stories from you. hugs!