Putting Inclusion into Practice

Kate Bunting
Posted March 15, 2018 from United States
 The needs of older women with disabilities are often missed in humanitarian response / Ida Shiang for HelpAge
The needs of older women with disabilities are often missed in humanitarian response / Ida Shiang for HelpAge

With the release of the new Humanitarian Inclusion Standards for Older People and People with Disabilities, I’m hopeful that inclusion can go from a niche issue to mainstream humanitarian priority. Inclusion is core to HelpAge’s mission as an organization and a practice we have long advocated for.

In 2014, HelpAge International collaborated with Humanity & Inclusion (the new name of Handicap International) on Hidden Victims, a report that looked specifically at Syrian refugees living with an impairment, injury, or chronic disease. What we found was that many more refugees than previously thought were struggling with unmet needs. In Jordan and Lebanon, 22 per cent of surveyed Syrian refugees were living with a disability. Among people 60 and over, the figure rose to an astounding 70 per cent. By contrast, only 1.4 per cent of UNHCR-registered refugees in Lebanon were identified at the time as having a disability. While not an apples-to-apples comparison, the fact remains that older people and people with disabilities often go unidentified in humanitarian crises. Today, not much has changed.

Our current data systems are still, by design, exclusive. Many official modes of data collection do not disaggregate data by sex, age and disability. Certain demographic and health surveys, for instance, still do not collect data on people over the age of 49 and when they do it may not be disaggregated by age.

Lumping people into homogenous data categories, doesn’t seem like the worst injustice until we consider how it sets humanitarian programs and policies up for failure. Not accounting for older age and disability in data collection means resulting programs and policies will be poorly designed to meet the needs of at-risk populations.

What this translates to in practice are distribution centers reachable only by those who can walk there; food only for those capable of digesting it; and emergency warnings understood only by those who can see and hear.

In a Women’s Refugee Commission report, Chris Stubbs of the Mentally Handicapped Children and Families Education Project, does not mince words when explaining what exclusion looks like.

“In all wars and disasters, it is persons [with disabilities] that are first to die; the first to get disease and infection; and the last to get resources and medicines when they are handed out.”

Many of the same people Stubbs refers to as the last to receive help are also older. Globally, the prevalence of disability increases with age. 38 per cent of all people aged 60 and above are living with a disability compared to just 9 per cent of people who are 18–49 years of age.

Conversely, when humanitarian practitioners make inclusion a priority, real progress happens in the form of lives saved and effective disaster preparedness. When a response team from the Kenya Red Cross Society mapped out at-risk households in Kisumu County, an area prone to flooding, they were able to locate the most vulnerable individuals — older people, people with disabilities, and pregnant women — and evacuate them using a power canoe, preventing them from being stranded.

And when Concern Worldwide, in a joint effort with the U.S. Office of Foreign Disaster Assistance (OFDA), undertook data collection in rural Pakistan that was disaggregated by sex, age, and disability, they were able to pinpoint breakdowns in accessing basic services. Insights from the data led to the installation of accessible hand pumps, providing clean water to many who could not access it before.

From the work of these humanitarian organizations and others like them, we know that when inclusion becomes a priority, change is possible. One of the first steps is collaboration. The Humanitarian Inclusion Standards for Older People and People with Disabilities represents the work of over 139 organizations across 26 countries, many of which are led and represented by older people and people with disabilities themselves. Strengthening inclusion is more than just the message behind the standards, it’s core to the project’s very development.

As we near the 7th anniversary of the Syrian war, I think not only of the many Syrian refugees who are struggling with unmet needs but of all the refugees caught in the world’s protracted humanitarian crises — those from South Sudan, Burundi, and Ukraine, to name just a few. While, as humanitarian practitioners, we can’t control the complex political and economic factors that contribute to these disasters, we can change how we reach those who are impacted. Let’s make sure that no one is left behind in humanitarian action; let’s put inclusion into practice.

About the Humanitarian Inclusion Standards for Older People and People with Disabilities

Developed by the Age and Disability Capacity Program, a consortium of 7 humanitarian agencies (including HelpAge International), and funded by the Office of Foreign Disaster Assistance (USAID), the Humanitarian Inclusion Standards for Older People and People with Disabilities are an essential tool for strengthening accountability and engagement in humanitarian response. They provide key guidance, tools, and case studies illustrating how to include older people and people with disabilities in humanitarian responses. To learn more, visit www.helpageusa.org

Comments 10

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jlanghus
Mar 16, 2018
Mar 16, 2018

Hi Kate. Thanks for sharing your story about your organization focusing on helping all the poor older women with disabilities that are being overlooked. How scary it must be for them and their families, too. I'm looking forward to improvement reports/updates from you on what your organization is able to do for this forgotten demographic.

Kate Bunting
Mar 20, 2018
Mar 20, 2018

Thanks for our comment! The lack of inclusive measures in humanitarian response is a sad reality but one we can change. Really small things like giving someone a walking stick or a chair can dramatically improve a person's quality of life. If we keep the conversation alive and work hard at these incremental small steps, I know the humanitarian community can provide more effective programs that meet the needs of older people and people with disabilities.

jlanghus
Mar 20, 2018
Mar 20, 2018

You're welcome:) That's awesome. I'm glad to hear that you can change it. I can imagine that a walking stick or a chair could really help someone in need, too. I love your optimism, and passion:-) Have a great day!

Clodine Mbuli Shei
Mar 16, 2018
Mar 16, 2018

Hello Kate ,
Thanks for putting more emphasis on disability inclusion and sharing the Humanitarian Inclusion Standards for Older People and People with Disabilities. Sustainable development can only be achieved when disability is mainstreamed at all levels. Its always great talking about disability inclusion.

Kate Bunting
Mar 20, 2018
Mar 20, 2018

Thanks, Clodine for your note. I completely agree. Only when inclusion is fully integrated into organizational structures and cultures will we see progress/full engagement of older people and people with disabilities in both humanitarian programming and society as a whole

Nnenna Hannah okoh-Metu
Mar 18, 2018
Mar 18, 2018

Its really heart breaking,the inclusion of the older ones needs to be look into.

Kate Bunting
Mar 20, 2018
Mar 20, 2018

Thanks, Nnenna. older men and women still have so much to give and contribute to their communities! HelpAge is working to shed light on this and reverse societal stereotypes and misconceptions of people in older age.

madison
Mar 19, 2018
Mar 19, 2018

I have worked with people with disabilities for years, and it can be very disheartening to be sure. Thank you for all your hard work.

Kate Bunting
Mar 20, 2018
Mar 20, 2018

Hi Madison, the suffering and exclusion that older people and people with disabilities face in crisis settings is indeed great. But, I'm inspired by by the collaboration and determination of our humanitarian partners to change how we do things--to manage resources more effectively, to listen, and to lift barriers. There's some great case studies in the inclusion standards that illustrate this change. You can read them free on the helpage usa site http://www.helpageusa.org/resources/adcap-inclusion-standards/

Beth Lacey
Jan 24
Jan 24

Just read your article. Thank you for sharing.

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