BE SICKLE CELL AWARE

Juliet Acom
Posted September 21, 2019 from Uganda

 

Yesterday 20th September 2019 was my 36th birthday.... I got the best present ever!!

A 10year old little girl - Juliana from Mukura, Eastern Uganda got her custom made special wheel chair  after a long wait! (finally finally! it has been quite a long wait from March 2018).

Juliana suffered a stroke from sickle cell disease related complications and her dad had made a wooden stroller to enable her be moved around - to hospital especially. I want to thank everyone who made this happen through intense prayer, financial contributions and in kind, physically by dedicating their time to this cause.

 

As a mother of a child living with SCD I always encourage people preparing to have children to do the sickling test. From my own experience, it is better to take time to ponder the decision to have children if you both have the sickle cell gene. 

Juliana is one of the many children affected by this disease, after her stroke she got paralysed and could not sit without support neither can she stand or walk at all. This chair will enable her have comfort during journeys to hospital and i am faithful that she will attend school and excel at it.

This project took almost 2years to accomplish, we were limited by both financial and physical resources but today I am proud that this little girl's life has been made easy.

This story was submitted in response to GirlForce: Unscripted and Unstoppable.

Comments 14

Log in or register to post comments
Lisbeth
Sep 21
Sep 21

Dear Juliet,
I hope you are having a great time today with a lots of chopped goals this day.

Congrats on your project and take care of the little girl for us.
Good awareness raising there about SCD.
Thanks

Juliet Acom
Sep 23
Sep 23

Hi Lisbeth,

Thank you for the encouragement. It is supportive comments like yours that make me work better.

Regards

Anita Shrestha
Sep 22
Sep 22

Dear Jullet.
Actually you are doing great job. It is better to expand this work with other person and community too.Thank you for sharing us and keeping pity photo.

Juliet Acom
Sep 23
Sep 23

Hi Anita,

Thank you for the advice and great feedback. I work with both individuals and organizations too.

I wish you a pleasant week ahead

regards

Anita Shrestha
Sep 23
Sep 23

Welcome Juliet for your sweet and nice words.

Jill Langhus
Sep 23
Sep 23

Hi Juliet,

What a great gift you gave this poor girl. Thank you for helping her out and for spreading awareness on this issue. Have you seen Anne Chantal's recent post saying the same thing, to ponder the decision before having children and to take the test first. You may be interested to follow her stories, and this one with a similar message:
https://www.worldpulse.com/community/users/anne-chantal/posts/91930

Hope you're doing well, and having a great week!

Juliet Acom
Sep 23
Sep 23

Hi Jill,

Thank you for the encouraging words. Let me check out Ann's post right away. I look forward to exchanging notes with her.

Have a fruitful week ahead
:)

Jill Langhus
Sep 23
Sep 23

Hi there, dear:-)

You're welcome! Yes, I thought you might. She's friends with Arrey, too.

Thank you, and you, too:-)

Jill

Tamarack Verrall
Sep 23
Sep 23

Dear Juliet,
What a great birthday gift, to see one girl receive the love and care, in the form of a wheelchair. It speaks to your beautiful heart, and important work raising awareness and help for people with sickle cell disease. Happy 36th birthday. May it bring a year with more of these moments.

Juliet Acom
Sep 24
Sep 24

Hi Tam,

Thanks so much for this feedback and the birthday blessings. Sending you cyber cake

Hello, Juliet,

Belated Happy birthday to you! Both of my children (now 6 and 2) were born on September (18 and 16, respectively). Wow! Same week as yours.

You're such a wonderful sister, full of love for others. Wow, this one is a long wait for Juliana. I could imagine how happy her family must have been just as you are. May your tribe increase!

Are you communicating with Sister Arrey with regards to Sickle Cell campaign? Perhaps you two can collaborate on some activities. :)

May God extend your territories more than you can ever imagine. Happy birthday again, dear. :)

Hugs!

Juliet Acom
Sep 24
Sep 24

Hi Karen,
Awesome to hear from you, always. Happy birthday to the September babies! We roclkkkk
Yes, we are friends with Arrey and have mutual friends in advocacy. We shall surely go to the kitchen and cook up something towards this cause. I am actually looking forward to it!

Thanks for the advice, I wish you a great day!

Regards,

Hello, Juliet,

Thank you for the greetings! Yes, you rock, September babies (and I'm biased because of my children.haha).
Ohh, what a powerful combo to be collaborating with sis Arrey and other friends. :) Please keep us updated! You're welcome.
Hope you have a great day, too!

Tarke Edith
Sep 24
Sep 24

Dear Juliet
Thank you for the great job you are doing over there on behalf of secleller. More strength dear.