Lenie Rose had a non-productive cough for a week and slight pain when lying on her right side. This prompted her to have a chest X-Ray for a fear of Tuberculosis.
The chest CT scan result confirmed an interior mass measuring 4.6 x 7.2 x 7.9 cm. The primary consideration was thymoma.
On the 11th of May 2018, she underwent surgery “median sternotomy, radical thymectomy, partial pericardiectomy, wedge resection of the upper lobe of the right lung, and bilateral tube thoracostomy”.
She was discharged from the ICU after five days in the hospital.
After her surgery, she was gaining physical strength and spending precious time with her family and friends. She started planning to finish her postgraduate studies and pursue a career abroad.
After four weeks of surgery, she notices a lump on her neck. She notices her face and neck were swelling. Her father rushed her to the hospital on the 29th of June 2018 to admit her and had her chest CT scan. Her illness was escalating.
The results of the diagnostic: tumor recurrence, metastases, and thrombus – were disheartening. A 2.1 x 2.7 x 4.2 cm tumor was effacing her superior vena cava. Nodules in both of her lungs enlarged lymph nodes, and increased density at some of her vertebral bodies were worrisome for metastases.
Thrombus formations were completely occluding the veins in her upper chest and neck. She had a Thymic Carcinoma Stage 4. (excerpt from Lenie Rose blog, click the link for details http://lenierose.com/a-crisis-called-cancer/)
She started her first chemo session with a prayer... “Help me, Father God – help me accept what is in front of me and trust in You on what is ahead.” (Psalm 9:10)
The chemotherapy exhausts her, brought discomfort and fatigue. This was the only beginning but already miserable for her. She cut her hair short for the anticipation of hair loss. To support her, her sister and mother cut their hair shorter too.
A week prior scheduled to her second chemotherapy session, last July 30 her tooth was aching. She needed root canal therapy and tooth extraction, both were done successfully and without complications.
A second chemotherapy session last July 30, 2018, done, she went to a salon to have her hair shaved. Her skin and nail beds started turning dark.
Lenie asked her doctor on how many more sessions she needs to undergo and I quote: she said that it depends because, with Stage 4 cancers, treatments such as chemotherapy are palliative. She mentioned the 4 reasons patients at this stage may choose to stop undergoing chemotherapy: the patient cannot tolerate the side effects, chemotherapy is not working, the condition is not improving nor worsening, or the patient simply chooses not to. But, I thought of a fifth reason: the patient is healed. Even when confronted with the dreadful word palliative, my trust in the Lord remained steadfast (Psalm 118:8).
Her fourth to fifth chemotherapy continues were the side effects of chemotherapy crushed her body and spirit.
She lost her appetite, struggle to force herself to eat, was nauseous, wanted to vomit but couldn't, her mouth felt weird.
But she keeps begging the Lord to give her endurance, asking God to save her, to take away the fears and doubts.
Last October 15, 2018, she was ambulance to the hospital because of a burning fever - 39°C, vomiting, her head was aching and her right cheek was swollen. She felt so weak and scared in the ER.
All she thought was our Lord Jesus Christ. She imagined Him carrying her, similar to the prose Footprints in the Sand.
Then she and her sister sang a Christian song "What a Beautiful Name" they both wiping tears as they sang. She was discharged and scheduled for the sixth chemotherapy session. (excerpt from Lenie Rose blog, click the link for details http://lenierose.com/still/).
As she continues her battle, her cardiologist said that she will only live until December 2018. She struggles with her prayer life.
Asking God: "is my endurance being tested?" "do I lack faith?", "do I lack patience?", "am I not fighting enough?" She felt defeated.
But she constantly meditates on Scripture, to the Lord’s promise of life to everyone who believed in Him. He already conquered death.
Each day she woke up, either seeing her family or finally seeing her creator is a win-win situation for her.
After various treatments from surgery, chemotherapy and radiation therapy for almost a year for Invasive Cortical Thymoma. She had a misdiagnosis.
Last March 27, she received the PET/CT scan result and it was not good. There is a progressive malignant disease.
The mediastinal mass increased in size. There are lesions in her lungs and kidneys. Abnormal lymph nodes are all over her chest and abdomen.
But, on the same day, the result of the slide review of her previous biopsy came out as Primary Mediastinal (Thymic) Large B-Cell Lymphoma (PMBCL). PMBCL is a high-grade (aggressive), rare type of non-Hodgkin lymphoma.
There is a miracle in misdiagnosis. Though still in Stage 4, she has better survival chances with this type of cancer – even a chance of remission or cure.
God has other plans for her (Jeremiah 29:11).
The Lord used her while she was at the ER. She took the courage to pray for a patient who had a miscarried and her baby had no heartbeat. They were both in tears as they both experienced the frailty of human life.
So the new journey of chemotherapy session begun for PMBCL.
She received outpouring support from her friends and family. A fundraiser started.
And this Faith Mugs by Lenie Rose was founded in the idea of sharing the Lord’s goodness to everyone http://lenierose.com/faith-mugs/
But last July 2019 Lenie was confined in the hospital for a month due to severe pneumonia, the tumors found in her kidneys grew twice in size.
This prompted the doctors to insert a stent in her right kidney and to declare her second treatment protocol (R-CHOP) as unsuccessful.
She is now receiving her third treatment protocol (Obinutuzumab plus Bendamustine) to address the disease.
The doctor said that the treatment goal is a Stem Cell Transplant. This will give her a 60% chance of cure.
The cost of the transplant alone could easily skyrocket to USD29,025 (P1.5M). Moreover, with her current chemotherapy, each cycle is estimated to cost USD7,740-USD9,675 (P400-500k) (Obinutuzumab is around USD5,418 (P280k) per vial).
The family has exhausted all their resources but they continue to find means to give Lenie a fighting chance against cancer.
They applied for an access program under Roche that gives them 50% discount for Obinutuzumab and looking for government agencies that could give financial assistance.
This fundraiser was set up so you could also support by any amount to spare, please click the link: https://gogetfunding.com/rise-with-lenie/
Her blog can access here so you can read her journey with how she's been fighting for this battle: http://lenierose.com/about/
I am writing this to support a colleague's sister.
My mother died from cancer.
She only had two sessions of chemotherapy and did not pursue because of the effect of the chemo towards her body plus the financial struggles we had at that time.
She passed away at the age of 42 as the doctors said she only live for two years.
Leni Rose showed strength and courage through her faith with Jesus Christ. She is a living testimony on how God extends His hand and still make miracles in her life.
Any financial support you can give will mean a fighting chance for Lenie.
You may also send directly to her bank accounts:
Bank of the Philippines Island - BPI Account #9329158303
Banco De Oro - BDO Savings Account #006350105841