SICKLE CELL DISEASE

MAPENZI
Posted October 26, 2018 from Kenya

am 23 years old and a survivor of sickle cell anemia, i have lived with this condition my entire life and its an inspiration to me because i want to show people that having sickle cell its not a curse and one  does not choose to be born with the condition. I want to make people understand sickle cell patients because you sleep feeling well and wake up the following morning very sick .Its not easy to work when you have sickle cell disease,your employees must be understanding but many employees see sickle cell patients as liabilities to their work.

I want to  stop stigmatization and negligence of sickle cell patients because it has led to many deaths of very young children that could be  leaders of tomorrow, i want sickle cell patients to come out and embrace their condition and stop hiding and acting like its a shame to be born with this condition.Its not a choice to be born with sickle cell condition but its just a genetically inherited disease,we must be given equal rights and opportunities like any other people in this world.

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Lisbeth
Oct 26, 2018
Oct 26, 2018

Hi dear,
Welcome to World Pulse and thanks for sharing your story. We all need awareness on this topic. I look forward to hearing more about sickle cell.

Warm regards
Lisbeth

Jill Langhus
Oct 26, 2018
Oct 26, 2018

Hi Mapenzi,

Welcome to World Pulse:-) Thanks for sharing your post and vision. You and Arrey (World Pulse member in Cameroon) should get together, compare notes and raise more awareness together. This is more about her, her work and mission: https://www.worldpulse.com/en/community/users/arrey-echi.

Looking forward to seeing more posts from you.

Hope you have a great day!

ARREY- ECHI
Oct 29, 2018
Oct 29, 2018

Dear Sis Jill,
Thank you for the link up. Something told me as soon as I saw this capture that if you have seen it already, there will be a link up ;). It is thrilling to find another sickle cell warrior here speaking out.

Much love and hugs,
Arrey

Jill Langhus
Oct 29, 2018
Oct 29, 2018

Hello love,

You're very welcome:-) Yes, and for real:) I hope you're able to collaborate and do wonderful initiatives together and spread even more love and awareness, dear:-)

XOXO

ARREY- ECHI
Oct 29, 2018
Oct 29, 2018

Hoping so too. It would be really great.

Hugs.

Jill Langhus
Oct 29, 2018
Oct 29, 2018

:-)

Olutosin
Oct 26, 2018
Oct 26, 2018

Thank you very much. I love your heart.
Welcome my darling sister

ARREY- ECHI
Oct 29, 2018
Oct 29, 2018

Dear Mapenzi,

Welcome to World Pulse Warrior sis.

I am glad to have another strong voice talking and debunking the myths around sickle cell. You are right, we didn't choose to be born with sickle cell and it is certainly not witchcraft.

Please follow my blog @ www.joy2endure.com and my activities here @ https://www.worldpulse.com/en/my-pulse/profile

Keep speaking out.
With love from Cameroon.
Arrey

MAPENZI
Nov 06, 2018
Nov 06, 2018

hi my email address is getrudemapenzi07@gmail.com my whtsapp number +254702222406 kindly get in touch

Juliet Acom
Jan 21
Jan 21

Hi Mapenzi!
You are a true warrior! Keep senaitisibg people about sickle cell. I am a parent to a 12year old warrior.
☺☺
I am always a message away if you need someone to share with.
You are a phenomenal woman!