Corruption has left the woman with a child with Autism live in Agony

Ndamosyao
Posted September 29, 2018 from Zambia

Running down the corridors of the biggest hospital, it all hollow sounds of weeping and yelling for those who have lost their loved ones is the order of the day.  Ooh cry my beloved country, what shall we do?  I gave birth to my lovely son after carrying the pregnancy for over 9 months.  I could not deliver normally reasons where not given to me, all I was told was the fetal heart was fainting.  Rushed into the theartre CS was performed, alas the baby was rushed to the ICU because it had consumed the amniotic fluids from mothers womb.  after 10 days we were discharged from hospital.  9 months later the baby started seizures and medication for epilepsy were prescribed.  That has been the order of the life till to date.  

My son was declared as a mentally challenged child with autism cannot go into a normal school but a school for children with special needs.  An American organisation created a clinic within the countries largest hospital and donated all manner of medication and aid for such children, thumbs up to you good people.  The greedy public officers misappropriated the funds and aid has been withdrawn.  Mothers with these children are now left hopeless in search of the much needed life drugs for epileptic children, unfortunately the drug that was prescribed for my son and a few other children cannot be easily be found in our country.  This drug costs US$300 per month.  This is an average income for a family to be consumed on drugs only.  All because of the so called in power enriching their pockets and forgetting the less privileged.  OOh cry my country.  

How running from one hospital and chemist looking for these essential drugs, what shall we do, the seizures are growing no aid from government what shall we do?  For me I can try to afford with struggle what about those that cannot speak and are not working.  I look as I sit among them in the corridors of the hospital waiting for a lasting solution, the Doctor walks in all they can give is a prescription,  " go and buy the medicine I know it is very rare I wish you all the best"  Is this a solution for a tax payer, is this a solution for the less privileged?  

My hope and prayer and plea is that please Donors come back we will not manage on our own the drugs cannot be found.  No social security no medical aid what is the difference with war.  This is silent war.

I rest my case.

 

This story was submitted in response to The Future of Security is Women .

Comments 6

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Ndamosyao
Sep 29, 2018
Sep 29, 2018

I send my love to all children with autism

Jill Langhus
Sep 29, 2018
Sep 29, 2018

Hi Ndamosyao,

Thanks for sharing your sad story. I'm so sorry to hear about your son's condition and that you aren't able to receive any aid any longer. Have you thought about doing a fundraiser? Have you searched online for safe alternatives to this treatment or any other organizations that could support you instead?

Please keep us posted. Good luck with your search and improvement in your son's health.

Tarke Edith
Sep 29, 2018
Sep 29, 2018

Hello Ndamosyao
Thanks for sharing this sad story of yours sister women have been downtrodden by the nations, just for some people to make more money into their pockets, well sister let keep on this platform to join our voices together to create a greater impact

emma matondang
Oct 04, 2018
Oct 04, 2018

Hi Ndamosyao
You have a beautiful name. I am very sorry for your son. I really hope all the best for you to take care of yourself and your son. I hope there some people heard you and then will help you. I would suggest you the same as Jill said. Trying to find help online.
Good luck and thank you for sharing.

Beth Lacey
Feb 03
Feb 03

So sorry for your son

Anita Kiddu Muhanguzi

Hi Ndamosyao,

Thank you for sharing such a personal story. Please share more on the progress of your struggle and autism. There are a number of organizations online that can help you get more information on how to deal with this disease and also groups of parents in the same situation like you. Feel free to reach out to us if you fail to get any information. Otherwise have a blessed day and looking forward to hearing from you.
Have a lovely day my dear sister.