The Tussle with Terminal Illness

It makes sense when we tell our stories because that's the only way we can communicate with others,though these are the stories we never want to tell because of the fear of how we feel walking that path again and the stigma that comes with it ,but we ought to remember healing comes with acceptance as its first doze. It takes courage to accept who we are and through this we are inspired to help others through the same ladder. Approximately 5% of the world's population carries trait Gene's for Haemoglobin disorders, mainly sicklecell disease and thalassaemia.Today let's major on Sicklecell. It is a blood disorder in which there aren't enough healthy red blood cells to carry oxygen throughout the body.Just like nature may have it,nothing is as hard as living with a terminal Illness, and most of the sicklers have not accepted their condition entirely which makes it hard to open up and speak about it.Especially when one is living in a society that discriminates people with the condition.The stigma that comes with this has led a lot of individuals into depression which trigger mental health. As peperusha binti we have taken an initiative to educate and create awareness on sicklecell disease in our society.This will increase the society's knowledge about sicklecell and help reduce the stigma faced by people living with sicklecell hence improving their mental wellbeing. We advocate for better health services and improved medication for sicklers through conversations about sicklecell and mental health to help support people living with the condition. We organise forums for caregivers and encourage them that there is hope. Caregivers are educated on how best to handle sicklers and this helps to reduce mental health problems among sicklers. It gives them hope to know they are not alone,and that they are cared for and their lives matters, during the pain they go through,sometimes,they just need people who care around them