ARREY - ECHI

Joined Jan 2016
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Following: 25Followers: 72

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI commented on Have you ever felt invisible? Mar 19 ARREY - ECHI loved Have you ever felt invisible? Mar 19 ARREY - ECHI commented on GIVING UP IS OUT OF CONTEXT Mar 19 ARREY - ECHI commented on As a Community, Your Impact Is Growing Bigger than Ever! Mar 15 ARREY - ECHI commented on Do not Look for Me in the Crowds of Those Celebrating Mar 08 ARREY - ECHI loved Once Again We Rise IWD 2019 Mar 08 ARREY - ECHI commented on Once Again We Rise IWD 2019 Mar 08 ARREY - ECHI commented on 50 For A Balance Mar 08 ARREY - ECHI commented on Timely adjustment will mobilise the needed resources in Building Your Self-Confidence. Mar 08 ARREY - ECHI loved Timely adjustment will mobilise the needed resources in Building Your Self-Confidence. Mar 08 ARREY - ECHI commented on Breaking the Silence Mar 08 ARREY - ECHI loved Breaking the Silence Mar 08 ARREY - ECHI commented on When women join hands and merge their stories Mar 08 ARREY - ECHI loved When women join hands and merge their stories Mar 08 ARREY - ECHI loved She was Born to Fly - More power to Girls- International Women Day Mar 06 ARREY - ECHI commented on She was Born to Fly - More power to Girls- International Women Day Mar 06 ARREY - ECHI commented on Think equal, build smart, innovate for change Mar 06 ARREY - ECHI loved Think equal, build smart, innovate for change Mar 06 ARREY - ECHI loved Stylish Women in a War Zone Mar 06 ARREY - ECHI commented on Stylish Women in a War Zone Mar 06 ARREY - ECHI loved Terrorized With the Image of Hell Mar 06 ARREY - ECHI commented on Terrorized With the Image of Hell Mar 06 ARREY - ECHI commented on Grateful To Meet A World Pulse Sister! Mar 05 ARREY - ECHI loved My Potential became unlimited from this date. Feb 19 ARREY - ECHI loved Welcome Back to World Pulse Feb 19 ARREY - ECHI commented on Welcome Back to World Pulse Feb 19 ARREY - ECHI commented on 2019 International Essay Contest: Promoting Youth in harnessing Culture of Peace and Sustainable Development Feb 19 ARREY - ECHI loved Grateful To Meet A World Pulse Sister! Feb 19 ARREY - ECHI commented on DRC: Security Begins With Women Feb 08 ARREY - ECHI loved MOVE ON! Feb 08 ARREY - ECHI commented on MOVE ON! Feb 08 ARREY - ECHI commented on Turning my dreams into a reality Feb 08 ARREY - ECHI commented on We’re searching for the most ambitious, game changing, female-led impact ventures in Africa: yher Africa 2019 Accelerator Program Feb 08 ARREY - ECHI loved My pulse is World Pulse Feb 04 ARREY - ECHI loved Shine Feb 04 ARREY - ECHI loved NIGERIA: Women Must Be Seen and Heard Feb 04 ARREY - ECHI loved Signs Your Career Needs a Makeover Feb 04 ARREY - ECHI loved A World Free From Violence Jan 17 ARREY - ECHI loved FIJI: Finding Our Voices, Communicating for Peace Jan 16 ARREY - ECHI loved Amur Falcon, the Untold Story of 'Tamenglong mandarin' oranges of northeast India Jan 14