ARREY - ECHI

Joined Jan 2016
  • Vocal Contributor
  • Voices of Our Future 2016
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Featured Changemaker
  • Encourager
Following: 24Followers: 67

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI loved A World Free From Violence Jan 17 ARREY - ECHI commented on A World Free From Violence Jan 17 ARREY - ECHI commented on World Pulse: The best advocacy platform I found just as I close the 3rd chapter of my life Jan 17 ARREY - ECHI commented on FIJI: Finding Our Voices, Communicating for Peace Jan 16 ARREY - ECHI loved FIJI: Finding Our Voices, Communicating for Peace Jan 16 ARREY - ECHI commented on CAMEROON: Without Health Care, We Are Not Secure Jan 16 ARREY - ECHI commented on Building a Digital Empowerment Center in Cameroon. Jan 14 ARREY - ECHI commented on Amur Falcon, the Untold Story of 'Tamenglong mandarin' oranges of northeast India Jan 14 ARREY - ECHI commented on Financial Freedom, a Key Ingredient in the Eradication of Domestic Violence in Teso Jan 14 ARREY - ECHI loved Financial Freedom, a Key Ingredient in the Eradication of Domestic Violence in Teso Jan 14 ARREY - ECHI commented on NIGERIA: The Hand That Rocks the Cradle Holds the Key to Peace Jan 14 ARREY - ECHI loved World Pulse IT Centers in Pakistan Jan 14 ARREY - ECHI commented on World Pulse IT Centers in Pakistan Jan 14 ARREY - ECHI loved Amur Falcon, the Untold Story of 'Tamenglong mandarin' oranges of northeast India Jan 14 ARREY - ECHI loved NIGERIA: The Hand That Rocks the Cradle Holds the Key to Peace Jan 11 ARREY - ECHI commented on CAMEROON: My Security Starts With Me Jan 11 ARREY - ECHI loved CAMEROON: My Security Starts With Me Jan 11 ARREY - ECHI commented on Empower the women: You empower the nation Jan 10 ARREY - ECHI commented on INDIA: My First Lesson on Peace Jan 10 ARREY - ECHI loved INDIA: My First Lesson on Peace Jan 10 ARREY - ECHI loved PHILIPPINES: During Disasters, Women Count On Each Other Jan 09 ARREY - ECHI commented on PHILIPPINES: During Disasters, Women Count On Each Other Jan 09 ARREY - ECHI commented on Feminist Foreign Policy - A viable solution for a feminist society Jan 09 ARREY - ECHI loved Feminist Foreign Policy - A viable solution for a feminist society Jan 09 ARREY - ECHI loved What gives me hope Jan 09 ARREY - ECHI commented on The HOPE we never Expected! Jan 04 ARREY - ECHI commented on "Harvest Song" Jan 04 ARREY - ECHI commented on Centre stage is where we belong Jan 04 ARREY - ECHI commented on A wife without a husband Jan 04 ARREY - ECHI commented on Mental Illness shouldn't be a handicap: Recovery is possible Jan 04 ARREY - ECHI loved Mental Illness shouldn't be a handicap: Recovery is possible Jan 04 ARREY - ECHI loved The HOPE we never Expected! Jan 04 ARREY - ECHI commented on I am a girl affected by conflict Dec 05, 2018 ARREY - ECHI loved NEPAL: Safety Shouldn’t Mean Losing My Freedom Dec 05, 2018 ARREY - ECHI loved Mental health,a cause for concern;a view inside my mind! Dec 04, 2018 ARREY - ECHI loved We Need to Start Taking Young Women’s Love Stories Seriously Nov 27, 2018 ARREY - ECHI loved Saving myself, so i may yet save the world Nov 27, 2018 ARREY - ECHI loved Putting to practice all that World Pulse has trained me on: Tamenglong Orange Festival Nov 27, 2018 ARREY - ECHI loved Talking about Puberty and Menstruation in Bihar Nov 22, 2018 ARREY - ECHI loved Sexual Violence: A Global Pandemic/ 3rd November to 10th November 2018 Nov 22, 2018