ARREY - ECHI

Joined Jan 2016
  • Vocal Contributor
  • Voices of Our Future 2016
  • Featured Storyteller
  • Advanced Digital Changemaker
  • Featured Changemaker
  • Encourager
Following: 23Followers: 61

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI commented on "The Ban" produced by Laila Al-Arian won an Emmy Award!! Here is a presentation by Laila about her movie and issues surrounding Trump's ban. Nov 09 ARREY - ECHI loved "The Ban" produced by Laila Al-Arian won an Emmy Award!! Here is a presentation by Laila about her movie and issues surrounding Trump's ban. Nov 09 ARREY - ECHI commented on Not Just Girl Talk - Turning A Story into Community Action Nov 09 ARREY - ECHI loved Not Just Girl Talk - Turning A Story into Community Action Nov 09 ARREY - ECHI commented on How Rape and the Silence Culture Empowers Predators Nov 02 ARREY - ECHI commented on "Oh! The Greed Of My Home Land" Nov 02 ARREY - ECHI commented on Menstruation Time Nov 02 ARREY - ECHI loved Menstruation Time Nov 02 ARREY - ECHI commented on Inmate ICT trainees prayed for me Nov 02 ARREY - ECHI loved Inmate ICT trainees prayed for me Nov 02 ARREY - ECHI commented on SICKLE CELL DISEASE Oct 29 ARREY - ECHI commented on Ourselves In The World of Stress Oct 29 ARREY - ECHI commented on Caring for myself Oct 29 ARREY - ECHI loved Caring for myself Oct 29 ARREY - ECHI commented on I Give Myself Permission: An emancipation poem Oct 29 ARREY - ECHI loved SICKLE CELL DISEASE Oct 29 ARREY - ECHI commented on The numbers on sexual assault in India keep mounting Oct 29 ARREY - ECHI loved The numbers on sexual assault in India keep mounting Oct 29 ARREY - ECHI loved WOMEN AND SECURITTY Oct 29 ARREY - ECHI commented on WOMEN AND SECURITTY Oct 29 ARREY - ECHI commented on Our Enslavement in Freedom Oct 24 ARREY - ECHI commented on POSH Workshop at Arvind Mahila College Oct 24 ARREY - ECHI loved POSH Workshop at Arvind Mahila College Oct 24 ARREY - ECHI commented on The Fruit of Colors Oct 19 ARREY - ECHI loved My Struggle from Overweight to Underweight Oct 18 ARREY - ECHI commented on My Struggle from Overweight to Underweight Oct 18 ARREY - ECHI commented on Self-Care: An Important but Often Neglected Tool in A Change maker’s Toolkit. Oct 18 ARREY - ECHI commented on Peace and security to me don't start with weapons, but with social values and principles Oct 18 ARREY - ECHI loved Peace and security to me don't start with weapons, but with social values and principles Oct 18 ARREY - ECHI loved Bodily integrity is my first security Oct 17 ARREY - ECHI commented on Tales Of an Empowered Girl Oct 17 ARREY - ECHI commented on A Girl's Memoirs With Demons (My story for World Mental Health Day) Oct 17 ARREY - ECHI loved A Girl's Memoirs With Demons (My story for World Mental Health Day) Oct 17 ARREY - ECHI loved To and For me: Self Care is the Best Care!!! Oct 17 ARREY - ECHI loved International Day of the Girl Child - 11/10/18 Oct 16 ARREY - ECHI loved Dear Ayo, in spite of our fractured girlhood we made it... Oct 15 ARREY - ECHI loved REUSSIR MALGRÈS LES FRUSTRATIONS MATERNELLE Oct 15 ARREY - ECHI loved Breaking the Silence: My Journey from Surviving to Thriving after multiple abuse Oct 15 ARREY - ECHI loved Jill Langus: A Light To Our World Pulse Home Oct 15 ARREY - ECHI loved My Voice Oct 15