ARREY - ECHI

Joined Jan 2016
  • Vocal Contributor
  • Voices of Our Future 2016
  • Featured Storyteller
  • Advanced Digital Changemaker
Following: 10Followers: 37

Break Sickle Cell Anemia Stigma With Me

What I'm Leading

Join me in the fight to demystify, to stop the stigma and discrimination, and to break the taboo and silence around Sickle Cell Anemia which makes many, especially women, to suffer in silence. Generally, there's a lot of mystery surrounding people living with sickle cell. A lot of families are ashamed of their sickle cell kids, worst if they are girls because they are seen as Taboo. This makes many to suffer in silence, deal daily with stigma, discrimination and it is worst if you are a woman because it is already difficult being a woman not to talk of being born with a health condition many attribute to witchcraft. So, there's an urgent need to help those affected by doing all we can to break the silence through educational activities, and advocacy campaigns. That's why we need to #BeASickleCellVoice to break the stigma and misconceptions around it. 

I go about this by organizing workshops, online colour awareness campaigns which I have been doing for three years now. I wear red and black through out the month of June which are Sickle Cell colours. I take daily photos of me and post on Facebook especially to draw focus on what it means to live with sickle cell and how to assist or prevent others from being born with it by encouraging people to get to know their genotypes and make informed decisions.

Who I'm Impacting

People living with Sickle Cell, especially women and the community at large.

My Updates

Bio

About Me

I am a young woman who is passionate about gender and disability issues and especially about people dealing with chronic diseases like sickle cell. I am more vocal with my pen reason why I have been writing about sickle cell on my personal blog www.joy2endure.com to empower people living with said condition.

My Vision

Form an advocacy platform for people living with Sickle Cell Disease in my home country, Cameroon. This will go a long way to make the government take more interest in the condition, empower sickle cell patients to speak out against stigmatisation and take charge of their lives.

Interests

EducationEnvironmentGender-based ViolenceGirlsHealthHuman RightsLeadership

Posts

Activity

ARREY - ECHI commented on UGANDA: Love, Work, and Sickle Cell 8:43am ARREY - ECHI loved If she is a daughter and not a son it does not mean she will not feel pain 7:45am ARREY - ECHI commented on If she is a daughter and not a son it does not mean she will not feel pain 7:44am ARREY - ECHI commented on OPEN LETTER TO FIRST LADY OF SIERRA LEONE: GIRLS & WOMEN NEED A COMPASSIONATE FIRST LADY 7:38am ARREY - ECHI commented on I never knew there is a hidden talent embedded in me. 7:34am ARREY - ECHI commented on Saving the lives of Malnourished Children in my Family. 7:30am ARREY - ECHI commented on On Changing the Narrative; My Weakness, My Wealth. 7:23am ARREY - ECHI loved REPOSITIONING MY EMPOWERMENT WALK FOR EFFECTIVE COLLABORATION AND SUSTAINABLE BUSINESS DEVELOPMENT OF POOR WIDOWS AND SCHOOL DROP-OUTS IN RURAL NIGERIA 7:19am ARREY - ECHI commented on REPOSITIONING MY EMPOWERMENT WALK FOR EFFECTIVE COLLABORATION AND SUSTAINABLE BUSINESS DEVELOPMENT OF POOR WIDOWS AND SCHOOL DROP-OUTS IN RURAL NIGERIA 7:19am ARREY - ECHI commented on Rural Women's Economic Empowerment 7:11am ARREY - ECHI commented on On Wealth 3:49am ARREY - ECHI commented on Representation of Women in Economics for Economic Empowerment 3:11am ARREY - ECHI commented on My sisters; my wealth Jul 16 ARREY - ECHI commented on How to Get Involved Jul 12 ARREY - ECHI commented on NIGERIA: My Letter to Mathematics Mar 27 ARREY - ECHI loved NIGERIA: My Letter to Mathematics Mar 27 ARREY - ECHI commented on PHILIPPINES: I Survived Tropical Storm Kai-Tak Mar 27 ARREY - ECHI loved PHILIPPINES: I Survived Tropical Storm Kai-Tak Mar 27 ARREY - ECHI commented on Disability: How can you ever take away the pain! Mar 27 ARREY - ECHI loved Disability: How can you ever take away the pain! Mar 27 ARREY - ECHI loved CAMEROON: I Will Not Let Disability Silence Me Mar 27 ARREY - ECHI commented on CAMEROON: I Will Not Let Disability Silence Me Mar 27 ARREY - ECHI loved My Digital Action Campaign Stood Out At #2017 Airtel Change-Your-Story Multimedia Training Sep 22, 2017 ARREY - ECHI loved UGANDA: Dear Sweet Baby Anita Sep 22, 2017 ARREY - ECHI loved ZIMBABWE: No One Told Me About My Period Sep 22, 2017 ARREY - ECHI loved More Exciting News about the Impact of “Bring a Girl to STEM” Sep 22, 2017 ARREY - ECHI commented on More Exciting News about the Impact of “Bring a Girl to STEM” Sep 22, 2017 ARREY - ECHI loved CAMEROON: I Survived Human Trafficking and I'm Changing Lives Sep 22, 2017 ARREY - ECHI commented on CAMEROON: I Survived Human Trafficking and I'm Changing Lives Sep 22, 2017 ARREY - ECHI commented on UGANDA: Dear Sweet Baby Anita Sep 22, 2017 ARREY - ECHI commented on CAMEROON: How My Grandmother Set the Pace for Girls in Our Community Dec 14, 2016