Do we call it challenged identity?
She does not understand why am distressed over losing my precious brown pigment progressively She says its simply cosmetic She says its nothing really as her mother had confirmed to her I need not worry Is your mother a Doctor/Dermatologist or ever experienced such directly or indirectly? She maintains my worry is vain She maintains she see no reason why I should be campaigning for the cause
She did not go to work someday and I inquired why? She asked that I take a close look at her, I saw nothing She was angry that I couldn’t see the boil at a corner of her face I wondered why she was referring to it Its because of that she couldn’t go to work She could not face the public with a tiny boil But she believes I should live comfortably with my black and white face
She continues to pester me to cover my patches with make-up Different suggestions from all angles as to what could help I wondered why no-one wanted to find out what am comfortable in at that point All I tried to say matters not; they wanted me to look how they want I must see some prophet as I had been bewitched It must have been nemesis or some curse on me They were beginning to avoid me, The stares and nasty comments were becoming unbearable Pity, dare I say ‘lip pity’ greeted me from all angle Can’t someone feel my pain and see from my view? A great confirmation that I live in a community that simply play lip pity Empathy was very far from it all, there was no empathy
I became scared of my future Ignorant ruled Yes whatever we do not understand in Africa must be some spiritual or magical powers Thanks to our deep religious orientation
Fear motivated me to become a loudspeaker For Vitiligo victims in Africa and beyond
Let us call forth voice where before there was silence and absolute ignorance. Let us educate and enlighten Let’s share the challenges we face Let’s get the world see our pains as we are neglected in our world Let’s bring Vitiligo cause to world center stage.
A world where vitiligo victims can be understood Where we will start living meaningfully and not just exist Where our employers, friends will see beyond just wanting us to be what they want Where relationships will be restored by simply sharing our stories
It was not as easy as I thought I expected the world to empathize with us and jump at it It’s one cause with so much sacrifice I am determined to go all the way My passion and positive impact on victims continue to motivate me
We are getting our voices out The world is getting it Resilience gets you there Voices from different communities, millions of voices strong
This is to enrich public understanding of the challenges and stimulate far-reaching and probing conversations for improved life. This is my contribution to making the World a better place This is my contribution to Vitiligo Community
THIS IS all VITSAF is about Communicating effectively challenges and everyday lives of the affected to the open society for action How it matters & how it affects quality of life and Rights of the distressed Be part of us.